Diaz on Diabetes
My dear friend and incredible suspense author, Lena Diaz, is my guest today. Lena wants everyone to remember that November is a special month for awareness as well as for giving thanks. She has opened her heart to share the day she almost lost her daughter to a terrible disease, and hopes her story will help others.
Diana Belchase: Thank you so much, Lena, for joining me today! You have told me about your daughter’s journey, can you tell us why November is a time of additional thanks for you?
Lena Diaz: When I think about what I’m thankful for, I can’t ignore the fact that November is Diabetes Awareness month. Eleven years ago, my daughter was diagnosed with this terrible disease, and for that–I am thankful. Not because she has diabetes of course, but because she’s a survivor. Like most people, I wasn’t aware of the symptoms of diabetes, and because of that, I very nearly lost my daughter.
By sharing this personal story about my daughter’s diagnosis, my hope is that people who think they know about diabetes – but have never personally experienced its impact in their lives – will take a moment to read this. You never know. What you learn might save a life.
Most people are familiar with Type II diabetes, which is typically caused, or at least exacerbated, by an unhealthy lifestyle (over-eating, over-weight). People with Type II can lose weight and exercise, and often (but not always) symptoms of the disease will dramatically improve or disappear altogether.
Diana Belchase: Your daughter is so beautiful and accomplished. Looking at that photo, I can imagine how scared you must have been. Which kind of diabetes does Jennifer have?
Lena Diaz: The picture above shows Jennifer in the hospital a couple of days after she was diagnosed with Type 1 diabetes, which is what I’m going to talk about today.
Type 1 diabetes is also known as insulin-dependent or juvenile diabetes, because it usually strikes children. In this disease, the islet cells in your pancreas stop producing insulin. Most people who get this disease are NOT overweight. And losing weight or eating differently won’t make it go away or make it better. Your body doesn’t produce insulin. Period. And if you don’t have insulin every day, you die. Period.
Most people think they know the symptoms of diabetes. Thirsty all the time. Check. Frequent urination. Check. But there are many other symptoms you may not be aware of. I used to be one of those people who didn’t know the other symptoms, and because of that, I almost lost my daughter. Let’s step back in time to when my daughter, Jennifer, was seven.
Jennifer was thin. Always. No matter what she ate, she didn’t gain much weight (Symptom #1). From the time she could hold a sippy cup, she liked to drink a lot. So, for her, drinking a lot (and therefore going to the bathroom a lot) was normal. (Symptom #2)
Jennifer was relatively healthy, just like any other child her age. But shortly after she started school, she would complain about tummy aches. (Symptom #3) She only complained occasionally. It wasn’t chronic. Kids get tummy aches. A lot. So I really didn’t think that was a problem. I gave her medicine for her tummy, and she always felt better the next day.
I took her for a haircut one day. The hair dresser called me over. I thought she was going to ask me something about the hair cut, but instead she showed me several long strands of my daughter’s hair. The hair dresser told me my daughter’s hair came out too easily (Symptom #4). I have to tell you, I blew that off. I thought that lady was being silly.
A few weeks later, my daughter wasn’t acting like herself. She sat around a lot instead of playing. Her cheeks were also bright red. My husband took her to the pediatrician. I asked my husband to be sure to let the doctor know that the hair dresser said my daughter’s hair was falling out too easily. Because by this time I was thinking the same thing, but I didn’t have a clue what that could mean. Our pediatrician ignored the hair symptom, much like I initially had. And he diagnosed my daughter with Fifth’s Disease, which basically means a red rash and that she is tired a lot and doesn’t feel well. The cure was to give her time to get better. (Being diagnosed with an illness OTHER than diabetes is Symptom #5).
The following weekend, my daughter woke up in the middle of the night. She said her tummy hurt. And she was breathing very fast. (Symptom #6) She threw up and then seemed to feel better. No fever. So I put her to bed with me and she went to sleep.
The next morning she was feeling better, but not great. Her tummy didn’t hurt anymore, and she wasn’t throwing up, but she sat around not doing much. And when I looked at her, I could tell there was something wrong, but wasn’t sure what. I can only describe it as saying she didn’t look like Jennifer. Something about her face was ‘off’ but I couldn’t figure out what it was. (Symptom #7 – sunken-in eyes)
That was in September, on a holiday weekend. I was definitely planning to take her back to her doctor after the holiday. But I was so worried about her, that I went ahead and took her to the emergency room. Honestly, I felt silly doing it. She had no fever. Her doctor had already diagnosed her a few days earlier with Fifth’s Disease, which could theoretically explain her not feeling well. But my gut told me to go, so I went.
On the way to the hospital. She complained about being thirsty and I bought her a Gator-ade to drink. She drank a LARGE bottle on the way to the E.R. – all of it. It did nothing to quench her thirst. Her tongue was dry like sandpaper (Symptom #8).
When the nurse triaged my daughter, I told the nurse my daughter didn’t feel well, had just been diagnosed with Fifth’s, and that she drank a bottle of Gator-ade on the way to the hospital and her tongue was dry. I also mentioned her face just didn’t look right to me but I didn’t know why. I hadn’t even finished telling her all of that when the nurse reached for a glucose monitor and checked my daughter’s blood sugar level. That nurse knew with just one look that my daughter was severely dehydrated – which explains the thirst and the sunken-in eyes that made her look ‘off’.
Her sugar level was too high to register on the meter.
My daughter was immediately taken to the Intensive Care Unit. Her blood was drawn and sent to the hospital lab to get an accurate blood sugar level reading, and she was put on an insulin drip. A normal sugar level is around 100. If your sugar gets around 250 or higher, it’s considered really bad and dangerous. My daughter’s sugar was over 1000. Her doctor later told me he had never heard of anyone having sugar that high who survived.
My daughter spent four days in the ICU. I almost lost her. The doctor later told me that when sugar levels get that high, people typically have seizures and die. He also told me that if I had waited until after the weekend, my daughter would have died. He estimated she was literally within an hour or two of seizing and dying.
Think about that for a minute.
How many of you would have taken your child to the emergency room when they had no fever and just seemed ‘off’ and just weren’t very active? Especially since the pediatrician had diagnosed her with a condition just a few days earlier that explained her symptoms? I don’t know for sure why I went to the E.R. that day. My gut just told me something was wrong, so I went. And I thank God that I did.
I’m not saying to assume diabetes every time your child has a tummy ache. I’m saying to trust your gut and be your child’s advocate.
MOST Type 1 diabetics are diagnosed with a different illness shortly before being diagnosed with diabetes. Why? Because Type 1 is an auto-immune disease. Every time a person with Type 1 gets sick — whether it’s a cold or something else — their body attacks the Islet cells in their pancreas, killing more of them. One day, one of those “attacks” kills enough cells so that the diabetic goes into ketoacidosis, which is what happened to my daughter. Her blood was literally turning to acid and killing her.
So what about all of those symptoms I mentioned? Here’s a quick run-down of each symptom, and what it really meant, even though I didn’t know it at the time.
- Can’t gain weight – Your body needs insulin in order to absorb nutrition, so without insulin your body eats all the fat to survive.
- Thirsty – If your sugar is too high your blood is getting acidic, so your body’s natural reaction is to crave water to dilute the acid.
- Frequent urination – Drink more, pee more (smile)
- Hair Falling out – Malnutrition! The body can’t absorb nutrients.
- Sunken-in Eyes – Dehydration because the body can’t absorb water anymore (acidic blood).
- Tummy ache – Malnutrition
- Throwing up – Potassium and electrolytes in the blood are all ‘off’ which throws the entire body out of whack and makes you sick
- Rapid Breathing – Respiratory distress. This is one of the last systems, along with throwing up. It happens right before the body shuts down. Next symptom – seizure and death.
Okay, enough of the doom and gloom. I’m happy to report that my daughter recovered and is now living a rich fulfilling life in spite of the incredible challenges of living with this horrible disease. (The picture above is a current picture of Jennifer.)
(Diana Belchase: As I said earlier, she’s gorgeous! And smart, too! I’m so glad this story has a happy ending!)
Hopefully by sharing my daughter’s story, I have educated some people about symptoms you may have otherwise overlooked. And if that saves a life, well then, that’s a wonderful thing.
Diana Belchase: Thanks so much for chatting with us, Lena, and for educating so many people. It’s amazing that even doctors can miss this diagnosis. By being the kind of mother that fights for answers, you’ve made sure your daughter is doing well today. And because Lena is such an incredible author, I have to remind everyone that her books make incredible gifts as well as the perfect way to relax on a cold winter’s night!