Autism advocates are speaking out after President Donald Trump linked Tylenol use to autism.
“These are misleading statements that are not based in science, very similar to the information that’s been put out about vaccines causing autism,” Melissa Rosenberg, Executive Director of the Autism Society of Maryland (AUSOM), told MCM Tuesday afternoon.
“It’s been very upsetting for people in the community to hear these kinds of statements that really take us back,” she said.
The website allstaraba.org gives an unofficial estimate of 24 thousand residents of all ages in Montgomery County falling somewhere on the autism spectrum.
The Claims
On Monday, Trump, joined by Health and Human Services Secretary Robert F. Kennedy Jr., suggested Tylenol use during pregnancy is linked to autism in children. The Food and Drug Administration will change the label for Tylenol and similar acetaminophen products to reflect that information.
While the FDA cited studies that found an association between acetaminophen and autism, the agency itself acknowledged that “a causal relationship has not been established and there are contrary studies in the scientific literature.”
Also, Leucovorin will be authorized as a treatment for children with autism. Leucovorin is a medication used in cancer treatment.
The Response
Rosenberg said Tuesday has been “a very difficult day” after Monday’s announcement. People have been reaching out via text, email, and on social media.
“Moms in particular, saying that, they never took Tylenol and maybe have a child or maybe two with autism. So, just the reaction to really not using evidence, but using blame in the case of Tylenol. So, we definitely want to get back on track with evidence-based scientific research that really guides us to supporting the autism community.”
AUSOM put out a statement following Trump’s press conference. The Autism Society of America, which is based in Rockville, also reacted with a statement.
They cited a 2024 study that found no causal link between acetaminophen and autism once family factors were included. They also said Leucovorin studies are extremely small and the research is early and limited, adding “Off-label use risks false hope and harm.”
The Resources
Rosenberg said the organization is here for anybody who is looking for reassurance, resources, facts, and information. There are resources available on AUSOM’s website. Residents can also call the resource line at 410-290-3466. A coordinator there can also provide support in Spanish.
“We think the cure for autism is acceptance, accepting our community as full citizens who have equal access to education, housing, healthcare. And that’s what we’re all about.”
