bone marrow

March 1, 2019 | Deirdre Byrne

Rare Disease Community Shares Unspoken Understanding at The Children’s Inn at NIH

Two families staying at The Children’s Inn at NIH in Bethesda have found comfort meeting others in the “rare disease community.” Lydia Mzame came to The Inn from Mombasa, Kenya to help her 13-year-old son who’s suffered from sickle cell disease since he was four months old. Mzame came with her husband and their two other children. […]

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